This was one of the best summer days—one of the long ones, where nothing else matters but sitting and being in the moment with friends who fill you up. Click here to see what I mean
It was also one of those moments when living with celiac disease didn't feel so heavy while being in a group setting. My friend, Kara @kulinara made sure Kolbie and I could eat and went above and beyond. I'm always so grateful when Kolbie doesn't have to look at me sadly because she can't eat anything. We have amazing people in our lives.
Kolbie's pump site and Dexcom fell off while we were swimming. Normally, I would have panicked and probably left to grab new supplies, but today, I didn't. We had packed her meter, and I decided we would wing it. I'm trying to be in the flow of my life. Her numbers stayed pretty amazing. When it was time to go, the older kids wanted to stay longer, but the babies were exhausted. My friend, who also has a son with type one, offered for them to stay. (Ironically his Dexcom fell off too.) My heart raced at first because I didn't want to make Kolbie feel different and make her the one to leave with me, but I also didn't know how I felt about her staying and not having any of her stuff working. I ended up letting her stay. (This was hard for me, but I did it!) I also felt very confident that my friend would know what to do if something went wrong.
And guess what? She was fine; nothing terrible happened, and her blood sugars stayed in range the whole time.
I wanted to share because, with all of the stuff that has happened to Kolbie this past month, my momma's heart has been pretty emotional, but sometimes we have to set our emotions aside and let our kids with disabilities live as normal of a life as they can. I'm learning and growing with these diseases Kolbie has to deal with, and although I'm not perfect, I hope I can help her enough so that when she leaves my home, she's confident in herself to be successful with it.
So, this is for you moms who ache to watch your kids try to navigate tough things. Not only can they do it, but we can, too!